August 18, 2022 / 1:26 PM We always surrounded him with love and he returned it, and so much more," Engel wrote alongside a sweet photo of his son. This disorder, which has no cure, causes a progressive loss of motor skills and language. After sequencing was performed on Henry, it was discovered that he had a mutation to the gene involved in Rett syndrome. He was also unlucky, born with a rare genetic disease called Rett Syndrome.". Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from juicy celebrity news to compelling human interest stories. 2022 CBS Interactive Inc. All Rights Reserved. In a video that Engel shared on Twitter, his son Theo, 2, affectionately kissed Henry on the forehead as Henry lay in bed. "But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.". Their son, Henry, was diagnosed with Rett Syndrome in 2017 when he was only two years old. Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease, Engel continued in a follow-up tweet, providing a link to Texas Childrens Hospital, which is fundraising for the cause. The NBC News chief foreign correspondent paid tribute to his son Henry, who died last month from a neurological disorder, on what would have been his 7th birthday. Mutual Fund and ETF data provided by Refinitiv Lipper. By studying Henrys cells several years ago, she learned that Henrys mutation affected the function of the MECP2 gene in such a way that it caused an important protein for brain development to be produced at lower levels. At times, Engel said found himself "dressed as a blue target" as a foreign journalist in Iraq. NBC News chief foreign correspondent Richard Engel shared a photo of his late son, Henry, on his 7th birthday. [citation needed] He reported on the advances made by rebel fighters within the country as well as the mass defections from Syrian President Bashar al-Assad's government army. The NBC News chief foreign correspondent paid tribute to his son Henry, who died last month from a neurological disorder, on what. This is how we will honor Henrys life, Zoghbi said at a recent event honoring Henry at the Duncan Neurological Research Institute at Texas Childrens Hospital in Houston, where she serves as director. "For everyone following Henry's story, unfortunately, he's taken a turn for the worse," the journalist captioned the touching clip. Zoghbi attributes in part to his parents the fact that Henry lived longer than most boys with the disease. Thats what we have to do, she recalled. Quotes displayed in real-time or delayed by at least 15 minutes. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest are remembering their son Henry, who died in August at 6 years old. . Courtesy Richard Engel. He had a lot of different weaknesses in his motor system.. On August 18, 2022, he tweeted, "Our beloved son Henry passed away. This is how we will honor his life. [18], In 2011, Engel reported, at times through tear gas, on the Egyptian revolution. "Henry had no bad qualities. (Nathan Congleton/NBCU Photo Bank/NBCUniversal via Getty Images), Fox News Flash top headlines for August 18. Dr. Zoghbi and Henry from a 2019 TODAY segment. The Duncan NRI's Founding Director Dr. Huda Zoghbi studied Henry's mutation closely. All rights reserved. RELATED: What is Rett syndrome? ", In another tweet on Thursday, Engel said: "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. 12,221, This story has been shared 9,366 times. David Rutz is a senior editor at Fox News. Because of his olderson's condition, Engel said hearing him say "Dada" was all the more meaningful. Thanks for contacting us. Henry Engel had Rett Syndrome, which slows development or causes loss of "purposefuluse of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability," according to the National Institute of Neurological Disorders and Stroke. So when he heard that sweet word come out of his son's mouth, it was a moment Engel will never forget. And with a smile. 2023 USA TODAY, a division of Gannett Satellite Information Network, LLC. In March 2022, he shared a somber update on Henry's health and said his son had taken a turn for the worse.. opened up on the "Today" show in Marchwith an emotional essay, NBC correspondent Richard Engel gets emotional after son with Rett Syndrome says 'Dada', 'Little People, Big World's Jeremy Roloff reveals he and wife Audrey are having a boy, Your California Privacy Rights / Privacy Policy. Richard Engel At the 2015 Peabody Awardsceremony Born (1973-09-16) September 16, 1973(age 49) New York City, U.S. Education Stanford University(BA) Occupation Television journalist Title Chief foreign correspondent for NBC News(2008-present) Spouse Mary Forrest (m. 2015) Children 2 (1 deceased) We don't want any other child to lose their life. 2022, Telly Award Winner - Gold - On Assignment with Richard Engel, "Afghanistan: Graveyard of the Empires", This page was last edited on 28 April 2023, at 19:17. We will continue to push as hard as possible to develop treatments. In the later essay, Engel shared that he "finally got a 'Dada'" from his son. Were so close. "Henry was special in so many ways," Zoghbi wrote. As of April 2022, Richard's net worth is estimated at more than $4 million. This week in Houston, at the Duncan Neurological Research Institute they celebrated him, dedicating a balcony in his honor," shared the journalist, 49. Trump asks for mistrial in E. Jean Carroll rape lawsuit, First Republic Bank seized by regulators, then sold to JPMorgan Chase, Reward offered as manhunt for Texas shooting suspect reaches "dead end", Tornado hits Virginia Beach, damaging up to 100 homes, More Americans escape Sudan as country teeters on edge of civil war, Mental health of LGBTQ youth worsening in current "hostile political climate", Stray bullet strikes college baseball player during game, Texas police say, MasterChef Australia host Jock Zonfrillo found dead at 46, Shaquil Barrett's 2-year-old daughter dies in drowning accident. Engel received the Medill Medal for Courage in Journalism for his report "War Zone Diary". Reach her at sophie.reardon@viacomcbs.com, First published on August 18, 2022 / 1:26 PM. Then we realized it was a genetic condition, and hes not going to get over it.. All rights reserved. or redistributed. Born in September 2015 . document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Richard Engel announced the heartbreaking news that his son Henry has died after a battle with Rett syndrome. As a geneticist and researcher, Zoghbi also values the moment when Henry met her team of students and scientists researching a cure for Rett syndrome. The syndrome is a rare genetic disorder with no known cure that prevented Henry from developing in the long term. Thanks for contacting us. According to Zoghbi, Henry left a lasting impression on the entire Duncan NRI team and their ongoing Rett research. He was born in the United States on September 16, 1973, in New York City. "But my wife Mary and I she was the main caregiver never quit for a moment. [14] He graduated from Stanford in 1996 with a B.A. Richard Engel paid tribute to his late son, Henry, who would have turned 7 years old on Thursday. Mary and Richard," Engel wrote on Twitter. Engel and his wife, Mary Forrest, welcomed Henry in September 2015 and their second son, Theo, in August 2019. Tracey Harrington McCoy is a celebrity news writer at PEOPLE Digital. Richard Engel Age. For the age expectancy of people living with Rett . Engel has shared updates on Henry over the years, writing essays in 2018 and 2019 about both the joys and heartbreaks the family experienced. The journalist previously announced that Henry died from Rett syndrome a rare neurological disorder that affects the way the brain develops on Aug. 18, just five years after he was diagnosed with the incurable disease. Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome. Because of Henrys unique mutation, Zoghbis team is using Henrys cells in ongoing research. Savannah Guthrie has shared a touching tribute to NBC News chief foreign correspondent Richard Engel's son, Henry after he died from Rett syndrome, a rare neurological disorder, at age six. The condition also led to dystonia, an uncontrolled shaking/stiffness. Sitemap, Your California Privacy Rights But even with all the difficult moments, there have been joyful milestones, too such as when Henry said Dada for the first time at 3 and a half years old. He nonetheless has drawn attention for being the son of Richard Engel, a multi-award-winning TV personality. In June, Engel said Henry had taken a turn for the worse, developing dystonia, characterized by shaking and stiffness. [79][80], "About us: Richard Engel - NBC News Chief Foreign Correspondent", "Seven-Pakistani journalists honoured at Newseum memorial re-dedication", "In Iraq, Journalist Richard Engel Sticks to the Story", "High Achieving Dyslexics: Richard Engel", "High Achieving Dyslexics: Richard Engel, Journalist", "Richard Engel on Finding Success With Dyslexia", "Success Stories: Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel, Chief Foreign Correspondent for NBC News", "Richard Engel: Covering War for a Decade", "Nominees for the 32nd Annual News & Documentary Emmy Awards Announced by the National Academy of Television Arts & Sciences", "Ukraine: Freedom or Death Putin Invades Ukraine", "Special Program: Journalists Memorial Rededication Ceremony", "Book Discussion on War Journal: My Five Years in Iraq", "Richard Engel Reports: Tip of the Spear", "Will Election Help Women in Afghanistan? While many media outlets pulled their journalists out of Iraq shortly after shelling began in March 2003, Engel stayed, and was subsequently one of the only Western journalists in the country. To support the research: https://t.co/M8LV8SHv6r pic.twitter.com/UNnDONMtR1. "Henry has severe special needs, and COVID has been an absolute nightmare for him and millions of other children like him. The Engels got in touch with Zoghbi, whos been researching the disease for many years. [53], Engel was married to a fellow Stanford student; the couple divorced in 2005. Richard Engel is an American journalist and veteran author currently serving as the Chief Foreign correspondent for NBC News network. I love all of them, she said. [citation needed] He frequently traveled outside Iraq's Green Zone, the fortified international zone in central Baghdad, to report on the genuine state of Iraqi life.[30]. Rett syndrome is a rare neurological disorder that affects the way the brain develops, according to the Mayo Clinic. In 2020, Engel opened up about the realities of how the COVID-19 lockdown impacted Henry and their family. Our Rett syndrome research will continue to push as hard as possible to develop treatments. Henry interacted with the world through sight, sound, and touch. "This is Theos first chapter, and a new one for our family. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo," he wrote on Twitter at the time. Richard and Mary Engel, with son Henry on Wednesday, October 3, 2018. . "MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the Texas Children's Hospital page explains. Engel linked to the memorial page in a follow-up post, writing, "Researchers are making amazing progress using Henry's cells to help cure RETT Syndrome so others don't have to endure this terrible disease. This material may not be published, broadcast, rewritten, or redistributed. His most recent book, And Then All Hell Broke Loose, published in 2016, is about his two-decade career in the Middle East as a freelance reporter. NBC News chief foreign correspondent Richard Engel and his wife Mary Forrest welcomed their second child, a baby boy, over the weekend. 13,615, This story has been shared 13,572 times. Engel also provided a link tothe Texas Childrens Hospital, which is fundraising for the cause. "He was in the hospital for 6 weeks, but is now home and getting love from brother Theo. Richard and Mary Engel, with son Henry on "TODAY" on Wednesday, October 3, 2018. He will always be with us, even now hes hard at work to help other children whose lives are more difficult than they should be, the NBC News chief foreign correspondent said on TODAY. [25] Engel's latest documentary, Ukraine: Freedom or Death [26] aired on April 22, 2022 and covered the first two months of the 2022 Russian invasion of Ukraine. We will continue to push as hard as possible to develop treatments. His son Henry suffered from a devastating diagnosis of Rett Syndrome. He was so happy and active. Nonetheless, he interacts . It was a special time.. Engel announced the death of Henry in August after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. Richard Engel's son Henry dead at age 6 after battling neurological disorder By Francesca Bacardi August 18, 2022 | 11:34am Richard Engel announced the heartbreaking news that his son. Our beloved son Henry passed away. Fox says Parkinson's battle getting 'harder': 'I'm not gonna be 80', Padma Lakshmi claps back at trolls: 'I have boobs, I have nipples', Kendall Jenner rocks sheer top, fur mini skirt for date night with Bad Bunny, Miley Cyrus mom, Tish Cyrus, engaged to Prison Break star Dominic Purcell, Fans confused over Lala Kent, Ariana Madixs White House dinner appearance, Woman has 'loud and full body orgasm' during LA Philharmonic concert. Henry was born with a variation of Rett syndrome, a rare genetic disorder that starts with normal early development, which then starts to slow usually around 6 to 18 months of age, causing loss of use of the hands, problems with walking and intellectual disability, according to the National Institute of Neurological Disorders and Stroke. In March 2011, Engel was caught in an artillery strike while interviewing fighters during a rebel advancement towards former Libyan leader Muammar Gaddafi's forces outside the city of Ajdabiya. [21], Engel reported on the Israel-Gaza conflict of 2012, the continued violence stemming from the revolution in Syria and its consequent civil war, and the political transition of Egypt following the election of President Mohamed Morsi in June 2012.[22][23][24]. ", "His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him," Zoghbi said in a statement. She recalled that losing Henry was one of the hardest days for her and her research team. Richard Engel on how son Henrys legacy will aid search for cure, according to the International Rett Syndrome Foundation, according to the National Institutes of Health, his condition started to worsen a few months. [50] In April 2013, Engel recounted his experience in a Vanity Fair editorial, titled "The Hostage". We always surrounded him with love and he returned it, and so much more. Legal Statement. According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability. Learning to take a few steps in his walker and communicating with cards and a computer.". What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. Fox News' Brian Flood contributed to this report. Dr. Zoghbi with Henry and his parents, Richard and Mary Engel. Engel opened up on the "Today" show in Marchwith an emotional essayabout his first son, Henry, finally saying "Dada" after being diagnosedwith Rett Syndrome, a rare genetic neurological disorder that leads to severe physical and cognitive impairments. Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological disorder. Richard Engel with his wife, Mary Forrest, and Henry. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Richard Engel is trying to find the good on a very sad day. Richard Engel announced on social media that his 6-year-old son Henry Engel has died after an aggressive battle with Rett syndrome, a rare brain disorder. ", RELATED VIDEO: Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry. "Our beloved son Henry passed away," Engel wroteon Twitter. Henry had been treated at Texas Children's Hospital's Duncan Neurological Research Institute since 2018. We've received your submission. Henry lost his life to Rett syndrome and we want it gone. In May 2006, he assumed his role as senior Middle East correspondent and Beirut bureau chief. The Engel family brought Henry to the hospital's Duncan Neurological Research Institute (Duncan NRI) in 2018 to seek additional answers. Many of Engels colleagues, including Hoda Kotb and Savannah Guthrie, honored the young boys sweet spirit following his tragic death. He doesn't sit up straight. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. [41] His coverage focused on the challenges of free elections in Afghanistan and the disruptions to democracy in the country. Fox says Parkinson's battle getting 'harder': 'I'm not gonna be 80', Padma Lakshmi claps back at trolls: 'I have boobs, I have nipples', Kendall Jenner rocks sheer top, fur mini skirt for date night with Bad Bunny, Miley Cyrus mom, Tish Cyrus, engaged to Prison Break star Dominic Purcell, Fans confused over Lala Kent, Ariana Madixs White House dinner appearance, Woman has 'loud and full body orgasm' during LA Philharmonic concert. And neither did Henry. We were hoping (Henry) would grow out of it. Currently, there isnt one, and treatment addresses symptoms of the syndrome, not its cause, according to NIH. 9,366, 2023 NYP Holdings, Inc. All Rights Reserved Richard and Mary Engel, with son Henry on Wednesday, October 3, 2018. At age 13, he joined a wilderness survival camp where he learned about leadership and how to be more independent. Chrissy Callahan covers a range of topics for TODAY.com, including fashion, beauty, pop culture and food. Youre my heroes," she wrote. TODAY's Savannah Guthrie shared her condolences with Engel and his wife, Mary. "Our beloved son Henry passed away. She believes Henrys cells could be the key to finding a cure for the illness, which causes severe impairments, affecting nearly every aspect of the childs life: their ability to speak, walk, eat, and even breathe easily,according to the International Rett Syndrome Foundation. In April 2008, Engel became Chief Foreign Correspondent of NBC News. Theo appeared to ask before giving his big brother another kiss in the sweet moment. I cant imagine a child who is showered with more love. We gather on our bed several times a day for what we call 'cuddle parties,' where we kiss him, rub him, praise him (he loves to hear his name and be praised) and curl his thick, gorgeous hair in our fingers," he wrote at the time. I'd add more colorful adjectives, but you get the point," wrote Engel, adding that Henry, who was 4 at the time, "doesn't walk or talk. On Thursday, the couple visited TODAY and opened up about their late son, his disease and the new balcony dedicated to his memory at the hospital where he was treated in Houston, Texas. [27] He was the only American television correspondent to remain in Baghdad for the entire war. He had the softest blue eyes, an easy smile and a contagious giggle. He has this smile that he looks at you youll see it in the pictures posted on the web and naturally, you fall in love with him, she told "TODAY." Mutual Fund and ETF data provided by Refinitiv Lipper. The son of NBC News chief foreign correspondent Richard Engel, Henry Engel, died eight months ago at age 6 but he's still at the center of the research that will hopefully prevent other. [37], Engel frequently traveled to Afghanistan to report on the situation between U.S. forces, the Afghani people, and the Taliban. Richard Engel, NBC News' chief foreign correspondent, shared sad news Thursday that his 6-year-old son Henry has died. 2023 FOX News Network, LLC. I care about all of them.. His cells are being used in cutting-edge research. Engel continued his coverage of the Iraq war in Baghdad as NBC's primary Iraq correspondent.[15]. Richard Engelhas some personal news to report. Theodore,. Terms of Use In 2012, he was awarded the Alfred I. du-Pont-Columbia Award for his outstanding breaking news coverage of the uprisings. Mary and Richard.. [38][39][40], Engel reported on Firebase Restrepo and the soldiers of Viper Company stationed in the Korengal where he showed the fierce firefights taking place between U.S. soldiers and Taliban forces. [3] He speaks and reads Arabic fluently and is fluent in Italian and Spanish. For an optimal experience visit our site on another browser. 3 min read. One . "Sweet, beautiful, and determined. 13,572, This story has been shared 12,221 times. His muscles are moving. What is most amazing, however, is the impact Henry had on so many of us at the Duncan NRI and on our Rett research. She is also working on her first novel, a domestic drama set in rural Regency England. Quotes displayed in real-time or delayed by at least 15 minutes. Through a genetic test, doctors learned he had a mutation to his MECP2 gene. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo, he shared. [5][6] His father, Peter, a former Goldman Sachs financier, and mother Nina, who ran an antiques store, feared for their son's future prospects because of his dyslexia. NBC News chief foreign correspondent Richard Engel announced Thursday that his son Henry, 6, has died. https://t.co/M8LV8SHv6r pic.twitter.com/21Ja6TOtjH. He attributed his attraction to journalism as "the prospect of learning about new subjects and having the privilege of riding the train of history rather than watching it pass". "Our beloved son Henry passed away. The interview also focused on Iran's empowerment as a result of the war in Iraq and how to counteract Iran's influence in the region. This is how we will honor his life.". [38][39][40] He often traveled to the Korengal Valley, otherwise known as the "valley of death", one of the most dangerous outposts in Afghanistan. Special needs kids have the most expressive eyes.. Arkansas woman indicted for selling stolen body parts to Pennsylvania man. For an optimal experience visit our site on another browser. He had the softest blue eyes, an easy smile and a contagious giggle. While Henrys cells are still being used in her research, Zoghbi stressed that shes learned so much from so many Rett syndrome patients on her path to find a cure. While many other children suffer from Rett Syndrome, Henry had a specific genetic mutation never seen before. Thats the nature of this disease.. Richard Engel, chief foreign correspondent for NBC News, announced on Thursday that his 6-year-old son Henry, diagnosed with Rett syndrome as an infant, had died. He just will smile and light up your day.. Richard Engel announced the death of his 6-year-old son Henry after his years-long battle with Rett Syndrome, a rare genetic neurological . "Mary and I are so excited to introduce our new son Theodore (Theo),'' Engel, 45, wrote in an email to "Today"Monday. She also shared the link to donate to support research in Henry's memory. 2022, NY Press Club Awards, Documentary National TV & Feature Reporting National TV. [15] In May 2008, he interviewed U.S. President George W. Bush, largely about his speech to the Israeli Knesset. Richard Engel Biography. A big thank you to everyone who sent kind and thoughtful messages, and donated to support medical research to defeat Rett Syndrome. He said in a candid essay for Today that Henry was "not doing very well" considering the circumstances. [29] Engel reported on events from different perspectives by gaining and maintaining frequent access to U.S. military commanders, Sunni insurgents, Shiite militias, and Iraqi families. [2] Before joining NBC in May 2003, Engel reported on the start of the 2003 war in Iraq for ABC News as a freelance journalist in Baghdad. [38][39][40] Engel produced "Tip of the Spear", a series of NBC reports on the hardships and dangers faced by American soldiers, for which he won a 2008 George Foster Peabody Award. You've successfully subscribed to this newsletter! Mary and Richard. Richard Engel Gives Update on Son Henry amid Coronavirus Pandemic Celebrity Parents Richard Engel Reveals Coronavirus Lockdown Has Been a 'Nightmare' for Son with Rett Syndrome Richard. Powered and implemented by FactSet Digital Solutions. He followed the uprisings in Egypt, Syria, Libya, Tunisia, Bahrain, and Yemen. Engel and Bush met privately in February 2007. "Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease," Engel added on Thursday, sharing a link where donors could support research at the Texas Children's Hospital. 2022, Deadline Club National TV Spot News Reporting. Richard Engel's son has a rare mutation of a gene that causes Rett Syndrome, a disorder usually found in girls. Taylor Swift's Atlanta ticket prices are dropping big time. This is how we will honor his life, the doctor continued. Engel wrote A Fist in the Hornet's Nest, published in 2004, about his experience covering the Iraq War from Baghdad. He had the softest blue eyes, an easy smile and a contagious giggle. But for me it was a validation, an acknowledgement that hes in there, knows me, knows that his mother and I are forces for good in his life, and above all, that he loves us.. He didnt always respond as they expected, but the excitement in his eyes told them he enjoyed and appreciated it. Never miss a story sign up for PEOPLE's free daily newsletter to stay up-to-date on the best of what PEOPLE has to offer, from celebrity news to compelling human interest stories. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene. "No matter what's coming, we want Henry to know he's loved," Richard Engel said in the segment. While describing the challenges Henry was facing, the journalist emphasized how lucky he felt to have Henry in his life. Richard Engel Height. "He had the softest blue eyes, an easy smile and a contagious giggle. 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The kids would come up and kiss him, tussle his hair and bring him toys, Engel shared. This kind of relationship is very important because it reminds everybody in the lab that there are human beings at the end of the road who are waiting and may one day benefit from this work., Henry helped us make a very strong connection, she continued.
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